Відео

Living in a Shitty Group Home. Have Autism. And I just seem to be realizing how much society has fucked me!

it's because disability is still seen primarily through the medical lense. it's a medical problem. so the solution is medicine/technology. that's how people think disabled people need to be helped, to be cured/fixed/etc. it's also seen as a charity thing. especially if you can't be "fixed," people will try to "sympathize" with you as a way to help in their eyes. but it's actually pity, they don't even consider disabled people can be happy with themselves. they don't see it as a human rights issue or a diversity issue that needs attention in the media, politics, education, etc. they think it's just sad and a personal problem, not a systemic problem. so they think those individuals should just be pitied and hidden away and deal with it on their own.

What a wonderful perspective and explanation. Thank you for sharing!

How tall are you? What is your shoe size?

hacking hacking.

T-Rex is what I call my grandson Rex! He's not been formally diagnosed but I know that he has cerebral palsy and I can tell the fixes right side because it is weak. If it is not too much could you tell me if you have to take medication for spasticity? Do you happen to know if you had a PVL/IVH at birth and what grade? Do you have a lot of pain? Have you ever tried scalp acupuncture or a TENS unit? ❤ from the US/West Virginia.

Keep Inspiring, Love it!

she aint steppin no where

Hi.

This looks a lot like TRE (Tension Release Exercises or Trauma Release Exercises).

It's annoying because I have a huge fear of heights and my anxiety is very high when I'm not close to the ground so buying tickets to concerts where I'm on the floor or close to the floor is very hard to get and then people like me and others with a disability have to choose not to go, there's one thing where you have disabled areas but it's usually for non walkers and people with like high autism and I'm not naming all of them but there is more, but for people with anxiety and a huge fear of heights it's either rely on presales which most of us can't get as we're working or in school or choose not to go because most of the floor and close to floor tickets have sold out in the general sale. People really do need to educate themselves when it comes to concerts. This is so sad what happened to this woman and your points are really good.

Beautiful <3

I'm so tired of being inspo-porn. I love your work, will keep following. Thanks for writing and talking about reality.

This once happened to me 😂

really great piece!!!

Thanks for sharing your story. I learned a lot. Stay shiny!

i love it!!!! ❤️❤️❤️🌸🌸

I once had someone I respected tell me, "Make sure you don't become too dependent on it [my wheelchair]," as if her limited knowledge of working in an SCI rehab department years ago gave her any information about my particular situation. To this day, she still can't explain what she meant by that, and it seems like these days every time she sees me when I'm using it, she makes some quip about it. I think the next time she does it, I'm going to say something about how she's not the one who has a messed up spine (decades of minor injuries not getting treated properly until a bit over a year ago) and sustained 14 concussions in the space of barely more than 6 years (the first one could have killed me, or nearly, if I hadn't been wearing a helmet - it's one of the reasons I never ride a horse without one). The weird thing for me is that I can walk 2 miles on uneven ground just fine, but I can't walk for even half a block on a smooth surface (such as a sidewalk) - because of my messed up spine, one leg is longer, and it always fatigues out on pavement, or even just standing still, because it's constantly getting more pressure than the other one, but on uneven surfaces it's constantly changing which side has more pressure, so it doesn't give out on me then. So I use my chair when I know, or am pretty sure, that my leg would start giving out on me. I also use it when I know that sitting in whatever chairs will be available to me is going to kill my back and/or legs - my wheelchair is the only chair that actually fits my short legs properly, so I'll take it when I know the chairs where I'm going aren't going to fit me.

I completly agree with you Robyn! . Particularly i was born with cerebral palsy too( I hate the appellation of that ilness!!!) It sholud be a little change it leastways . Don't you think?Thanks so much for this!. Greetning from Poland. Oh may I have a personal question to you? Did you had any furry or other small friend(animal,pet)? If your answer is yes :what type? what gender? What 's him or her name? How old he or she was? If your anwers is no what was the reason(why)? Do you want to have it anytime? What type? I had a so many BFF who I cound't imagine life without them. Now I have got another BFFF who I call Surprise. She's my eight guinea pig in line but first with really lony hair(Abisian).I love her all of my spirit and hard. She's the only one person in my very small family who I want and can tell absolutly everything!

How can you deal with your disability? Please reply as soon as you can need to know how you do it?

Hey Robyn, I came upon your video because a classmate posted it for a discussion on intersectionality, and I wanted to tell you that your performance and your writing has really given me some empathic insight with which to inspect a bias that I wasn't fully aware of. I hope you are still writing and performing; your perspective is powerful.

This was super duper helpful. Thank you so much!

Thank you for sharing. I have the same CP and I’ve just started my channel.

All very well spoken! I'm newly disabled, living with family who are all very much in denial, and have always accused me of not trying hard enough in life in general. I am working on getting my own wheelchair without their support, so that I can DO MORE than I can without one.

Yes I have cerebral palsy and have been walking since I was three years old I’m now 26 and I feel the effects of getting Older and it is becoming more uncomfortable and more physically draining.

Robyn thank you so much for this. I can relate to this as a wheelchair user. I’m a Christian and occasionally I get someone asking me at church if they can pray for me.. out of the blue and of course they don’t know me or my situation. This is a very challenging situation to be in and I have struggled lately to really understand why it makes me so uncomfortable. Your insight is indeed a great help. I have started to realise it was the confrontation that I’ve been fearing when really my focus needs to be on how I deal with it. In the future I’m going to have a different approach by saying “Actually… it’s me who should be praying for you!” I will turn it round by asking them why they chose to ask me and if they realised by being targeting someone it might instead make someone feel uncomfortable. There are a lot of assumptions that people make judging the wheelchair and seeing it as a negative when in fact it’s a great way of getting around for those who need it and not a big deal to us as chair users. . “Can I pray for you?” Could easily be interpreted as “I don’t accept you the way you are”. This is a terrible burden to carry and it’s not ok to weigh people down with it even if it was unintentional. I’ve come a long way to get where I am and indeed God loves me just as I am. I read somewhere “It’s not what you look at.. it’s what you see”. I think it’s time to challenge people’s perceptions when it come to acceptance no matter who they are. It’s time to start accepting others just as they are.

Good to see another proud cripple on here! I have spina bifida, hydrocephalus and rods in my back from scoliosis, so I have the street cred on this. LOL. Fundamentals of Caring was a movie I really identified with, especially as a guy who grew up watching classic Britcoms. I just can't get enough of that sarcastic, dark humour. Mulberry was one of my favourite shows growing up in the early 90s, about the son of Death, The Grim Reaper and Springtime (takes after his mom) who becomes the manservant for a rich lady - but his real reason for being there is to "reap" her. It has some of the best, funniest, emotional and most ironic dialogue I've ever seen in a sitcom. I'm half-Welsh half-Irish Canadian (I'm a "Thornycroft" - as in the shipbuilders), so Craig Roberts' performance works well for me. And Selena Gomez and Paul Rudd are both at their best here, I think. She's never looked or acted better in any film in my opinion. Gorgeous and sassy, but with a definite edge and depth.

Was shown this for class & *LOVED IT*

Wow, Robyn. Thank you for this!

I've found medium height ergonomic backs like jay makes work super well to prevent back subluxations for me. If you need the back support, Jay makes really good ones!

In other words you don't want people with disabilities to learn the best skills to improve their disabilities and make it so that those disabilities impact them as little as possible, but you just want people to be forced to say "yeah you're great and equal to me even if you have a disability and you clearly can't perform this type of task which NORMALLY people can". You also want business to constantly sponsor "minorities"? Go figure, the grifter wants handouts. I had a friend who's on a wheelchair and has a rare condition which makes his bones very fragile, to use his condition the way you did for personal gains while pretending to fight for DiVeRsItY, I'd definitely shove my fist in your face.

<3

I love your accent 🇺🇸🇺🇸✌🏽✌🏽 I also have cerebral palsy,

I've called myself a cripple, gimpy, or disabled for years. I hate the term differently-abled. And not a big fan of handicapped sounds too much like I'm playing golf. My daughters have given me the nicknames of Gimples(as my oldest calls me ) and the hobble goblin. (as my youngest calls me.) 😹

Thank you for the info. It's helpful to know what I should look for as someone who is a newer wheelchair user. I appreciate it when others who are more experienced make videos on this subject.

Ugh yeah, cause prayer will magically heal my screwed-up DNA. I get they're trying to be nice but it's like they're saying I'm broken but I'm not I'm happy the way I am. I agree you want to help how about volunteering or helping make sure places are truly accessible to everyone.

You rock, thank you. I use a wheelchair part time and it makes so much difference

Thanks for sharing

great blond star I love her great fight

Not to sound rude but you sound like a man

Its seems your not cerebral palsy or spastic diplegic... Amazing..

Great video! So many people don't even think about being inclusive, it's just not on their radar! I speak to people about my inclusive story books all the time and they say, 'what a great idea, I've never thought about disability being included in story books'. ALL children need to see positive images of disability around them every day. This teaches acceptance, respect and understanding for the differences we all have. Looking forward to seeing your future videos! Best wishes, Lesley x.

I am so happy I found your video. Im in school for Speech Language Pathology. We are being taught that Person first is the proper way. I found your points very interesting. I love what you said about identifying womaness, or blackness, or whiteness. etc. Great points.

Hi everyone.😊 God is real, He wants you well. He is your cure.😊 you are healed in the spirit realm and He wants to heal you in this physical realm.😊

Hi everyone! 😊 God wants you to be healed. All of you.😊 God did not cause you to have a disability. Disabilities are from the devil. Not God.

just realized that maybe I should have said thank you for being a Disabled UA-camr! What I meant by my previous wording was that it takes courage to just be a UA-camr! But to actually talk about your disability openly is commendable. It’s something that I struggle with.

Over another :-) sorry about the typo:-) Just love ❤️ 💗💕the video!

Robyn, Thank you so much for this video! It made me want to cry in a good way :-). You did such an eloquent job of explaining the reasons behind your preference for using IFl. Tearjerking and beautiful! I also encounter CP, and have a strong preference for using PFL, but it’s such a personal decision. It depends so much on how each person defines themselves I.e. What is the most important aspect of your identity to you, and how do you experience your disability? For example, what positive and negative experiences have you had with language associated with it? It’s so personal for each ! And you did an amazing job explaining your preference, so much so that I, although I firmly believe in using PFL for myself, strongly agree with a lot of what you’re saying !!#HappyTears:-) i’ve recently done some investigating regarding IFL, and although I don’t think the language best describes my personal experience or my primary identity, I definitely think that IFlL is a really important perspective to keep in mind! I really love how it emphasizes the existence of social barriers, and how they need to be destroyed, while also embracing your disability as part of who you are. There’s something wonderful and beautiful in that. Since each person is different, I think the world should know more about PFL and IFL, and why people might prefer one type of language other another. Which is precisely why videos like this are really important! We might have differences about how we experience disability, and how we refer to it, which are very important differences but we are part of the same community, and we need to support each other while educating the 🌎 :-) Thank you for helping to do that! Thank you for being a UA-camr who is unafraid to speak about your disability, that takes a whole lot of courage! :-)

really like this but I'm so sorry the music is too loud. thanks for the video. it's amazing

Wow I need some physical therapy!